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Post by NoahsDad on Apr 20, 2009 7:21:58 GMT -5
Anyone have experience with Flupertine?. Any noticeable improvements? Where can I get it if it is not available in the US? Any other information about this drug would be helpfull.
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Post by johnheuch on Apr 20, 2009 8:37:44 GMT -5
We had Nick on Flupertine... The reason we took him off became a financial issue. He went until Jan 28 without a seizure. the would put him a 12 years 1 month +. Please remember every child is different and every one responds differently. He has JNCL. He was on it since he was seven.
We got our last shipment through Global RX, but they no longer do it. They did give a list of you to contact regarding getting the Flupertine. You might ask them.
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