Please Login or Register.
Post and find information on a wide variety of topics related to Batten Disease or the BDSRA
Post and reply to medical questions from Batten parents and family members.
If you have medical equipment that you would like to offer as part of the Medical Equipment Exchange Program, please feel free to list your equipment here.
Find posts from the former BDSRA Bulletin Board here.
A place to share stories, lessons and developments with other batten stricken families.
BDSRA sibs are invited to post and reply on topics related to being a sibling of a child with Batten disease. This Board is password protected. Please PM an administrator for the password.
Are you hosting a fundraiser for BDSRA? Feel free to share your information here.