Batten Disease Information

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Post and find information on a wide variety of topics related to Batten Disease or the BDSRA

Moderator: Eric

65 247 Website/Bulletin Board Suggestions
by nainkepay
Jun 27, 2020 8:12:44 GMT -5
No New Posts Medical Questions

Post and reply to medical questions from Batten parents and family members.

Moderator: Eric

43 239 H1N1 vaccine
by Brook
Jul 28, 2021 11:18:05 GMT -5
No New Posts Medical Equipment Exchange

If you have medical equipment that you would like to offer as part of the Medical Equipment Exchange Program, please feel free to list your equipment here.

8 13 Looking for equipment
by imuhimu
Jun 3, 2019 11:59:17 GMT -5
No New Posts Bulletin Board Archives

Find posts from the former BDSRA Bulletin Board here.

104 153 Another Angel--Posted by Donna 1/21/09
by gakodama
Jun 7, 2019 1:36:23 GMT -5

Family Stories

Board Threads Posts Last Post
No New Posts Family Perspectives

A place to share stories, lessons and developments with other batten stricken families.

Moderator: Eric

4 34 Hello to all the wonderful people!
by dfsfeed
Feb 1, 2010 1:20:14 GMT -5
No New Posts Sibs

BDSRA sibs are invited to post and reply on topics related to being a sibling of a child with Batten disease. This Board is password protected. Please PM an administrator for the password.

Moderator: Eric

0 0 No posts have been made on this board.
No New Posts Family Fundraisers

Are you hosting a fundraiser for BDSRA? Feel free to share your information here.

16 63 BDSRA Awareness Day
by sdfsdf
Apr 16, 2011 1:43:39 GMT -5

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