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Post by Amy Lombardi on Apr 16, 2009 15:42:32 GMT -5
Subject: We would appreciate your help Debbie Ham Feb 5th, 2009 - 8:36 PM Hi, we are working on a fund raising project and could use your help. We need: 1. pictures of children that have already passed away from Batten disease that we can put in a photo montage on our website - www.thebattenproject.com2. please check out our website it is not complete but gets the message across I think. Please share it with others - we need to get the word out. 3. share the link for the short introductory video we have on our website and on youtube www.youtube.com/watch?v=jKqkbrCMN1Y with others - again we want as many people as possible to know about the effort. Thank you for your help - together we can make a difference.
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