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Post by Amy Lombardi on Apr 7, 2009 9:05:13 GMT -5
As you all know, the 2nd Annual BDSRA Awareness Days are set for June 6th & 7th, 2009. If you are having a fundraising activity to promote the Awareness Days, please let myself or Warren Shuros know.
There are 2 Awareness Day Press Releases available to everyone. Simply customize the press release to your story or fundraising activity and submit it to your local newspaper or television station. This is a simply and easy way to help promote the Awareness Days. We also have new brochures available.
If you have any questions, or would like a copy of the Press Releases, please email me at kirka@bdsra.org or call 1-888-379-2546.
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Post by chawkins on Apr 15, 2009 19:27:01 GMT -5
The national fundraising committee is sponsoring, for the second year in a row, National Batten Disease Awareness Days on June 5,6,7th. We hope that you will join us in promoting public awareness of Batten Disease, and we would like to suggest an easy and low cost way to do so. Some families across the country have fundraisers scheduled for these days and we welcome any fundraising activities that may correspond with this weekend, although awareness is our primary goal. So if fundraising is just not your cup of tea, we have just the thing. First step is to contact your local shopping center, mall, church, pharmacy, whatever or wherever makes the most sense for you and ask them one question: “ Can we pass out reusable grocery bags free of charge to your patrons on June 5, 6 or 7?” We will provide you with these bags and brochures with the new BDSRA logo and a customizable press release that you can send to your local media outlets. Some chapters have recruited family, friends and even fraternity or sorority students , boy scouts, girl scouts or anyone that may want community service hours. Please contact me if you are interested in participating and we can make arrangements to get materials out to you and help you plan your activities for the day. chawk328@ctc.net or 704-756-0521
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Post by msbones on Nov 23, 2009 19:26:15 GMT -5
I was wondering how can I get some more of those black Batten reusable bags?
Thanks
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