Post by Amy Lombardi on Apr 1, 2009 9:20:54 GMT -5
Subject: Ingrown Toe Nail
Name: Joan Ditmar
Date Posted: Jan 20, 09 - 6:53 PM
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Message: I hesitate to post this question on the discussion forum, as it seems so small in comparison to the battles most of you are dealing with, but here goes... Our 13 year old son has JNCL. We have recently struggled with an ingrown toe nail on his big toe. Understanding his gait is impeded due to the mobility challenges, I'm not sure how far to press the Podiatrist on how to treat it. Has anyone ever experienced this with their child?
Name: Corrina Dahl
Date Posted: Jan 20, 09 - 7:46 PM
Message: I haven't expirienced this with my child but I do know it can get infected if not treated properly. They can also be quite painful which could affect his walking even more. So, I would get the dr to make sure its not infected and its not too painful.
Name: Mary Bortz
Date Posted: Jan 21, 09 - 5:00 AM
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Message: I haven't had this happen to my girls but have had them myself and can tell you it can get very painful - even if not infected. If your son still walks and wears shoes I would have the podiatrist take care of the nail. It is painful to have it treated but there is no residual pain after the procedure. Hope this helps.
Name: Nori
Date Posted: Jan 21, 09 - 7:38 AM
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Message: It is important to remember that our batten's kids are first and foremost just like everyone else with the same little ills and problems that we all get. They get colds, headaches, sores, and everything else you can think of. Would you not treat it in a "normal" child? One of my "Batten's sons" got ingrown toenails frequently, but so did his brother and his Dad. Usually frequent ingrown toenails are the result of nails that have too much curve and they grow into the skin because of it. We had his toenails "reduced" (that's where they cut off the sides of the nails and kill the nailbed in that area so that it does not ever grow back) and he was problem free from then on. His Dad and brother ended up having their big toenails completely removed to solve their problem.
If it is not a chronic problem, the doctor can fix it quickly........have him do it. They are terribly painful!
Name: Nancy Peterson
Date Posted: Jan 21, 09 - 11:53 AM
Email: Click here to Email
Message: Hi Joan,
First - never apologize for posting.
David began having problems with his left big toe when he started so shuffle. I am sure pushing against the end of his shoes didn't help. Once he had to have the nail removed because it pulled up. Even when he was bed ridden his nails tended to row wrong and he would get really sore toes. We had a podiatrist check his feet every two months. Definitely, see a podiatrist. They can get really bad. It may just b a case of how it is trimmed, or more like Nori suggested. The procedure she described that she had for her son is more common than you realize. Nori is also right about them having all possible ailments. David had gallstones from the nutrition formula he was on. Good luck.
Take care. Nancy
Name: Joan Ditmar
Date Posted: Jan 20, 09 - 6:53 PM
Email: Click here to Email
Message: I hesitate to post this question on the discussion forum, as it seems so small in comparison to the battles most of you are dealing with, but here goes... Our 13 year old son has JNCL. We have recently struggled with an ingrown toe nail on his big toe. Understanding his gait is impeded due to the mobility challenges, I'm not sure how far to press the Podiatrist on how to treat it. Has anyone ever experienced this with their child?
Name: Corrina Dahl
Date Posted: Jan 20, 09 - 7:46 PM
Message: I haven't expirienced this with my child but I do know it can get infected if not treated properly. They can also be quite painful which could affect his walking even more. So, I would get the dr to make sure its not infected and its not too painful.
Name: Mary Bortz
Date Posted: Jan 21, 09 - 5:00 AM
Email: Click here to Email
Message: I haven't had this happen to my girls but have had them myself and can tell you it can get very painful - even if not infected. If your son still walks and wears shoes I would have the podiatrist take care of the nail. It is painful to have it treated but there is no residual pain after the procedure. Hope this helps.
Name: Nori
Date Posted: Jan 21, 09 - 7:38 AM
Email: Click here to Email
Message: It is important to remember that our batten's kids are first and foremost just like everyone else with the same little ills and problems that we all get. They get colds, headaches, sores, and everything else you can think of. Would you not treat it in a "normal" child? One of my "Batten's sons" got ingrown toenails frequently, but so did his brother and his Dad. Usually frequent ingrown toenails are the result of nails that have too much curve and they grow into the skin because of it. We had his toenails "reduced" (that's where they cut off the sides of the nails and kill the nailbed in that area so that it does not ever grow back) and he was problem free from then on. His Dad and brother ended up having their big toenails completely removed to solve their problem.
If it is not a chronic problem, the doctor can fix it quickly........have him do it. They are terribly painful!
Name: Nancy Peterson
Date Posted: Jan 21, 09 - 11:53 AM
Email: Click here to Email
Message: Hi Joan,
First - never apologize for posting.
David began having problems with his left big toe when he started so shuffle. I am sure pushing against the end of his shoes didn't help. Once he had to have the nail removed because it pulled up. Even when he was bed ridden his nails tended to row wrong and he would get really sore toes. We had a podiatrist check his feet every two months. Definitely, see a podiatrist. They can get really bad. It may just b a case of how it is trimmed, or more like Nori suggested. The procedure she described that she had for her son is more common than you realize. Nori is also right about them having all possible ailments. David had gallstones from the nutrition formula he was on. Good luck.
Take care. Nancy