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Post by Amy Lombardi on Mar 18, 2009 8:14:22 GMT -5
Hi BDSRA Parents, Family and Friends--
Welcome to the new Bulletin Board. I hope you enjoy the new format. I am going to try and move some of the old posts over to the new Board. In the meantime, please start posting new questions and topics!
Also, the Sibs Board is password protected to help Sibs feel like they can post safely without feeling pressure from parents and to help keep the Sibs safe from outsiders. If you'd like the password, please PM me or email me.
-Amy
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Post by pegdicap on Mar 18, 2009 9:32:58 GMT -5
Hi. I'm replying in here to see if it works, and if so, how the replies will view on the new board. Looks like this will be a great improvement. Thanks! Peggy d
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Post by nikkiv on Mar 18, 2009 11:30:06 GMT -5
I'm just testing it out as well. Hope everyone has a great day!!!
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Post by corrina on Mar 18, 2009 12:40:07 GMT -5
Hi everybody! The new board looks great!
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Post by laurabutenhoff on Mar 18, 2009 19:54:20 GMT -5
:-*This is gonna take some time to get used to, but think it will be great in the long run, just had to post to see how it works.
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Post by wshuros on Mar 22, 2009 12:53:42 GMT -5
Greetings, My computer did not lock up. Already an improvement.
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Post by mastron4 on Apr 17, 2009 21:30:58 GMT -5
Great new site and forum.
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Post by cristina on Apr 20, 2009 22:29:58 GMT -5
Hi, I'm a mother of a child with Batten Disease. I'm Brazilian (sorry my english!). I'm just testing...I liked the new look.
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Post by zoejenkins on Apr 23, 2009 0:46:15 GMT -5
hi there .... i am writing because I usually write on my brother's birthday (10.12) but today was the day he passed away 11 years ago, and for the first time i am having the worst day i have ever had .... I have spent the last 11 years giving my time and efforts into anything that have made me feel more connected to him and this year I was not able to do anything because of the efforts I was making in graduate school .... I just want to write so he knows how much I am thinking of him and how everyone is thinking of him ..... I will never tell anyone it gets easier with time, because it doesnt, it gets easier with commitment to a cure, he is my angel and I will never ever forget him, thank you for giving me a sense of self the confidence than I can make a difference, i love you, Barry Michael, you have taught me humanity when no one else could, I will love you always. - zozo
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