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Post by Amy Lombardi on Mar 31, 2009 9:39:52 GMT -5
Subject: Ironman for Batten Disease! Name: Nori Date Posted: Oct 13, 08 - 6:58 PM Email: Click here to Email Message: Our oldest son, Adam Weaver, ran in the Ironman World Championships in Kona Hawaii on Saturday October 11. He dedicated the race to his two brothers, Tyson and Tim, who have died from JNCL. He was able to raise over $4000 for BDSRA and also raise awareness of this deadly disease. A news cast was done on our local news in September and can be viewed on YouTube. We were also filmed at the finish line on the live coverage Saturday. That can be viewed on Iroman.com
Name: Tini Date Posted: Oct 14, 08 - 7:09 PM Message: Way to go Adam! What an accomplishment! Thank you from your BDSRA family!
Name: Joe Allio Date Posted: Oct 24, 08 - 7:47 PM Email: Click here to Email Message: AMAZING! Great job Adam, you and all the Weaver family are a gift to the Batten Families, thanks for all you do.
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