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Post by Melinda Watson on Jun 6, 2010 12:43:29 GMT -5
I have 2 children with JNCL. Luke will be 18 in September. I'm not sure what/if I need to do anything legally to be able to make his medical decisions. Also didn't know if he could start drawing Social Security.
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Post by Peggy DiCapua on Jun 17, 2010 19:33:31 GMT -5
I'm not sure about all the legal issues, as my son passed at age 8. But I do know that the social workers at my son's school were full of information and really knew all the ins and outs of the state programs and benefits. You might try them to see where to start. Good luck (PS - if you happen to be in NY or NJ, contact the Metro NY/NJ Chapter and they can help you out)
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