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Post by shambles on Nov 17, 2009 11:37:32 GMT -5
Life in the eye of Batten’s to my cousin
twitch. shake. tremor. kick - where is everyone? mummy, there she is. Screech of delight. Yes, excited. medicine, no, swirling pink syrup..... light - over there? pretty. pink syrup, why? what? no, watching light. leave me alone. play with train. pink syrup. play with train. OH. chocolate buttons, yes pink syrup then chocolate. 1, 4 more.... “all gone.” traaii....
train. play train. watch train. play ball. car. music. train. ball. run. scream. delight. being chased. freedom. where did everyone go? mummy? “mama” there, there, hug, kiss. squeal...run. teeter...fall. what? what happened? abscence
train. sqqueeal. where are we going? what’s happening? noooo. play with train. don’t want socks. zoo? zoo? lions? ok. mummy, zoo? mummy. zoo, lets go. go now. go. car, music. clap, clap. zoo, go quick. run. no pushchair. run.
tired. sit down. lions. can’t see. where lions? where lions? WHERE LIONS? no. monkeys. birds. snakes. seals. penguins. water.....wet water. water....watch the water. gurgle. moan. tired now. home. mummy.
eat. no food. cheese straws. and another. another. another. ice cream. yes please. no medicine. nooooo no. twitch. tongue shakes. no mummy. no medicine. chocolate. medicine. chocolate. mmmm everyone claps, happy. bed, bed. sleepy. bath. water. wet wet wet. splash. squeeal. splash. over, dry? warm. bed. cuddle. lie down. mummy don’t go. up, up. down. sleepy. up. up. sleep. mumm......
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valb
New Member
Posts: 1
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Post by valb on Jan 4, 2012 3:34:53 GMT -5
That is a lovely, sympathetic and understanding poem about this awful condition.
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