|
Blogs?
Nov 8, 2009 23:58:18 GMT -5
Post by Kat on Nov 8, 2009 23:58:18 GMT -5
I think you posted a comment on my blog so you probably already have the link. Whats your URL?
Mine is mrskatvon.com (just in case there is another firefly). :-)
|
|
|
Blogs?
Nov 9, 2009 14:51:17 GMT -5
Post by janelle on Nov 9, 2009 14:51:17 GMT -5
Hi I have two blogs, one is specifically related to my daughter Tatyanna (updated sporatically) - www.tatyannashope.blogspot.com and the other is my personal blog that I've kept since long before Tatyanna was even born - www.skynan.blogspot.com It's funny when I started blogging so many years ago, i didn't realize the importance it would later have to me. Although it's heartbreaking to look back on the early days, before Tatyanna was diagnosed, I am so very glad that I have all those memories written down.
|
|
|
Blogs?
Nov 10, 2009 18:17:23 GMT -5
Post by chrisgeer on Nov 10, 2009 18:17:23 GMT -5
Jacob has two. I started his carepage before he was diagnosed. I started it in June of 2007 when we were taking him out of state to try and wean him from his feeding tube. I had backtracked since infancy since he had a prior complex medical history. At the feeding clinic, he started having seizures and that was the beginning of where we are now with a Batten Disease diagnosis. This one I use to update appt.'s and also an outlet. www.caringbridge.org/visit/jacobgeerThe other one is www.jacobsprayer.org which we started to help bring awareness about Batten with some info and a blog I update on major appt.'s. It also has links to our news stories.
|
|