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Post by Amanda Fiorelli on Nov 1, 2009 16:22:57 GMT -5
My name is Amanda Fiorelli, and I am a college senior doing research on Batten disease for a course requirement. I am creating a brochure about Batten disease to share with my classmates, who are elementary education majors like myself.
I would like to include an interview with a parent of a child with Battens in my brochure. I believe that you will be able to share with us information and insights that we would not be able to find in text books and medical journals. I am particularly interested in any advice that you would impart to future educators who will be working with students affected by Batten disease.
If you would be willing to share your story with me, I would be very appreciative! You can respond to this forum post, or feel free to email me at abfiorelli@yahoo.com
Thank you!
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Post by Amanda Fiorelli on Nov 23, 2009 14:07:11 GMT -5
Thank you so much to those of you who responded to my request via email. I greatly appreciate your willingness to share your stories with me.
I have begun the interview process with a family, and will be turning in my completed project next week. I am anticipating a great end product!
Thank you again for your help.
Thanksgiving blessings to you all!
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