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Hello
Nov 3, 2009 0:46:42 GMT -5
Post by corrina on Nov 3, 2009 0:46:42 GMT -5
Welcome Firefly. First of all I am so sorry to hear about your stepson. You will find this is a very supportive place, although they are working on the website so its not as busy as it used to be, but there are still people here.
I think everyone that has close contact with a child with batten disease is affected so I am sorry people are treating you that way. Please feel free to ask questions or talk about anything you would like.
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Hello
Nov 4, 2009 1:35:00 GMT -5
Post by Dawn Sorenson on Nov 4, 2009 1:35:00 GMT -5
Hi Jess and Steve, Welcome to your new Batten Family, unfortunately under these circumstances we meet. My name is Dawn and I live in British Columbia, Canada. My daughter, Tina, had Late Infantile as well and died when she was 8 years old, in 1995. Where do you live? Feel free to ask any questions related to Battens...we are here to support, listen, laugh and cry.
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