|
Post by Keith Johnson on Aug 19, 2009 22:20:57 GMT -5
We regret to inform you that our daughter Elisabeth, age 22, died Monday from Juvenile Batten. She had suffered a rapid decline since April, no longer able to stand or speak. In June she was hospitalized for severe bleeding of the bladder caused by the insertion and subsequent removal of a catheter. Over the last two weeks she had developed contractions which were not adequately controlled through medication. In her final days she developed a urinary infection which she simply could not fight off She died at home with her parents, her doctor, and family friends by her side. Her sister Rachel arrived from Los Angeles about thirty seconds after she died. Obviously, Elisabeth did not want her sister to see her in the throes of the dying process. As you can probably understand, as we mourn her passing, we consider it a blessing that her suffering is now over. We are also grateful that we were able to contribute to the cause of finding answers to this dreadful disease through tissue donation.
|
|
|
Post by Nikki Vigil on Aug 20, 2009 8:37:58 GMT -5
Prayers go out to your family.
|
|
|
Post by Ruth Hardin on Aug 20, 2009 14:34:00 GMT -5
We love you guys Keith. Elisabeth was blessed to have a family who loved and cared for her as you all did. Please know you are in our prayers during this difficult time.
|
|
|
Post by mrskatvon on Aug 21, 2009 21:06:37 GMT -5
I am very sorry for your loss.
(((HUG)))
|
|
|
Post by Irena on Aug 22, 2009 7:15:00 GMT -5
Dear Keith and Alice and family, So sorry to hear about Elisabeth, you are all in our thoughts. Love from the Newcombes x
|
|
|
Post by corrina on Aug 24, 2009 12:43:42 GMT -5
I am so sorry for your loss.
|
|
tinim
New Member
Sometimes the miracle we get is not the miracle we asked for.
Posts: 15
|
Post by tinim on Aug 26, 2009 19:11:20 GMT -5
I am so sorry to hear of your loss. Elisabeth was a sweetheart. If I remember right, she also loved the tales of Hank the Cowdog. She was a beautiful girl with a contagious smile and laugh. Your family is in our thoughts and prayers during this difficult time. Hugs from the Montavon Family
|
|
|
Post by Tina Heuchan on Aug 27, 2009 9:01:05 GMT -5
Our thoughts and prayers go out to you and your Family...(((HUGS)))
|
|
|
Post by Joni Metcalf on Oct 1, 2009 7:52:30 GMT -5
Keith & Alice, So sorry to hear of your loss. My thoughts and prayers go out to you at this very sad time. Joni Metcalf
|
|
|
Post by Warren Pfohl on Nov 10, 2009 21:05:12 GMT -5
Dear Keith, I am sorry for your loss. We just lost our son, David, on October 22nd. The mixture of sadness and the blessing of the suffering being over has been an amazing journey. We will be praying for you and your family. Sincerely, Warren Pfohl
|
|
|
Post by firefly on Nov 11, 2009 0:28:49 GMT -5
I'm so sorry for your loss. We will be praying for your family.
|
|