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Post by nikkiv on Jul 28, 2009 7:29:07 GMT -5
I'm sure that many of you are familiar with the other families that post on the board, so you may know this information, but when anyone posts a message, can you identify what version of NCL your child has or maybe there is a way to put this in a signature to your post.
The different versions have different disease processes and I don't know if my LINCL experience may be relevant to a Juvenile or infantile child. I don't want to comment on something that may not be relevant.
I hope that makes sense.
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Post by johnheuch on Jul 28, 2009 11:32:55 GMT -5
Lets see if this works I put JNCL in the personal note field This can be added in the profile section after signing on.
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tinim
New Member
Sometimes the miracle we get is not the miracle we asked for.
Posts: 15
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Post by tinim on Jul 28, 2009 22:30:03 GMT -5
I put my information on the signature field.
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