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Post by jl62378 on Jul 17, 2009 10:50:53 GMT -5
We're trying raise awareness and funding for our 4 year old daughter who has CLN2.
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Post by mrskatvon on Jul 29, 2009 14:00:22 GMT -5
We are another MA located Batten Family, my daughter has JNCL (CLN3).
Nice to meet you.
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