Batten Disease Information

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Post and find information on a wide variety of topics related to Batten Disease or the BDSRA

Moderator: Eric

65 247 Website/Bulletin Board Suggestions
by nainkepay
Jun 27, 2020 8:12:44 GMT -5
No New Posts Medical Questions

Post and reply to medical questions from Batten parents and family members.

Moderator: Eric

43 239 H1N1 vaccine
by Brook
Jul 28, 2021 11:18:05 GMT -5
No New Posts Medical Equipment Exchange - 1 Viewing

If you have medical equipment that you would like to offer as part of the Medical Equipment Exchange Program, please feel free to list your equipment here.

8 13 Looking for equipment
by imuhimu
Jun 3, 2019 11:59:17 GMT -5
No New Posts Bulletin Board Archives

Find posts from the former BDSRA Bulletin Board here.

104 153 Another Angel--Posted by Donna 1/21/09
by gakodama
Jun 7, 2019 1:36:23 GMT -5

Family Stories

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No New Posts Family Perspectives

A place to share stories, lessons and developments with other batten stricken families.

Moderator: Eric

4 34 Hello to all the wonderful people!
by dfsfeed
Feb 1, 2010 1:20:14 GMT -5
No New Posts Sibs

BDSRA sibs are invited to post and reply on topics related to being a sibling of a child with Batten disease. This Board is password protected. Please PM an administrator for the password.

Moderator: Eric

0 0 No posts have been made on this board.
No New Posts Family Fundraisers

Are you hosting a fundraiser for BDSRA? Feel free to share your information here.

16 63 BDSRA Awareness Day
by sdfsdf
Apr 16, 2011 1:43:39 GMT -5

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